National
AIDS group criticizes Obama as int’l conference approaches
Others praise administration, call attacks ‘misplaced’

Tom Myers, chief of public affairs and general counsel for the AIDS Healthcare Foundation (Blade photo by Michael Key)
President Obama is facing criticism from an HIV/AIDS group for not yet committing to speak at the upcoming International AIDS Conference and not doing more to confront the global and domestic epidemic. Other groups, meanwhile, are calling the criticism of Obama misguided.
On Monday, the AIDS Healthcare Foundation held a news conference in D.C. at the offices of Parry, Romani, DeConcini & Symms Associates to call on Obama to speak at the conference and take more action to confront HIV/AIDS. The organization provides advocacy and medical care to more than 166,000 people with HIV/AIDS in 26 countries.
Tom Myers, chief of public affairs and general counsel for the AIDS Healthcare Foundation, was particularly critical of Obama for not yet confirming that he’ll make an appearance at the upcoming 19th International AIDS Conference, which will will take place at D.C.’s Walter E. Washington Convention Center during the week of July 22.
“We are here to express our concern and dismay that, less than two weeks from the start of the conference, President Obama has yet to commit to attending it,” Myers said. “In the 20-odd year history of this conference, it is virtually obligatory for the head of state of the host nation to address the conference at its opening.”
It’s the first time since 1990 that the conference will take place in the United States. Organizers agreed to hold the conference in D.C. after the lifting of the HIV travel ban in 2009, which had prevented HIV-positive foreign nationals from entering the United States. The process for removing the ban started under the Bush administration through legislative action and ended under the Obama administration.
As of Monday, the conference hadn’t yet announced whether it had received confirmation that Obama would speak. Shin Inouye, a White House spokesperson, said he had no updates on whether Obama will attend the conference.
Former President Bill Clinton has agreed to speak at the conference this year as well as former first lady Laura Bush. High-ranking administration officials who are set to speak include Secretary of Health & Human Services Kathleen Sebelius and Eric Goosby, U.S. Global AIDS Coordinator.
It’s not unprecedented for the head of state to be absent from the conference, according to organizers. The Canadian prime minister didn’t speak when the conferences were held in that country in 1996 in Vancouver or 2006 in Toronto, nor did Spain’s prime minister attend the 2002 conference in Barcelona. In 1990, then-President George H.W. Bush didn’t address the conference in San Francisco, but then-Secretary of Health & Human Services Louis Sullivan delivered remarks at the closing ceremony.
While criticizing Obama for not confirming his attendance, Myers at the same time said the administration wasn’t doing enough to confront HIV/AIDS and said “it may be better if the president not attend the conference if he is coming without any concrete proposals to fix these problems.”
For starters, Myers criticized the president for cutting funds in the fight against the global AIDS epidemic, calling on Obama to restore the money that was cut from PEPFAR, as part of the fiscal year 2013 budget request.
“Internationally, the Obama administration is the first administration to actually propose cutting funding to America’s efforts, including cutting almost half a billion dollars from PEPFAR, the President’s Emergency Plan for AIDS Relief,” Myers said. “A retreat in the efforts to fight the global epidemic is unprecedented.”
The sentiment that Obama has taken a step back in global fight against HIV/AIDS was echoed by Omonigho Ufomata, the AIDS Healthcare Foundation’s director of global policy and advocacy.
“We demand he restore funding to PEPFAR and expand treatment prior to addressing the International AIDS Conference,” Ufomata said. “We have a blueprint for stopping AIDS, i.e get more people on treatment, but that can only be achieved if President Obama gets real about the money.”
Further, Myers faulted Obama for not providing enough support to the AIDS Drug Assistance Program, the primary program for providing lifesaving HIV/AIDS drugs to low-income people, saying the wait list for the programs stands at 2,000 people.
“Domestically, President Obama has presided over the longest and deepest waiting lists for the AIDS Drug Assistance Program, or ADAP in history,” Myers said. “ADAP is the primary program for providing lifesaving HIV/AIDS drugs to uninsured people of limited means in this country and for years, thousands of people, at one point almost 10,000 people, have had to wait to receive these drugs.”
Myers called on Obama to redirect funds within the Department of Health & Human Services “to immediately end the ADAP waitlists once and for all.”
Despite these criticisms, Obama has generally received praise for his work on HIV/AIDS. On World AIDS Day in December, President Obama announced an additional $35 million for the ADAP program and $15 million more for Part C of the Ryan White Care Program as well as a three-year, $4 billion pledge to the Global Fund to Fight AIDS, Tuberculosis and Malaria.
Additionally, under the FY-13 budget request, funding for the Ryan White AIDS Drug Assistance Program would increase by $75 million. The budget also bumps up $1 billion for AIDS drug assistance programs, an increase of $67 million above the previous fiscal year’s levels. The administration is predicting this funding will end ADAP waiting lists next year.
A White House official, speaking on condition of anonymity, said PEPFAR is able to accomplish more with less money in previous years as the number of people the United States directly supports with lifesaving antiretroviral treatment has more than doubled from around 1.7 million to more than 3.9 million.
“PEPFAR continues to improve efficiency and lower costs,” the official said. “By using generic drugs, shipping commodities more cheaply, task-shifting to nurses and community health workers as appropriate, and linking AIDS services to other programs (such as maternal and child health), the per-patient cost to the U.S. of providing anti-retroviral treatment for AIDS patients has fallen by over 50 percent since 2008.”
Based on this commitment, the leaders of other HIV/AIDS groups said they didn’t share the criticisms levied against Obama by the AIDS Healthcare Foundation.
Carl Schmid, deputy executive director of the AIDS Institute, said he’s still hoping Obama will make an appearance at the AIDS conference, but believes the criticism is “misplaced” and should be directed elsewhere.
“We feel the president has been leading on domestic AIDS and has put forth an ambitious National HIV/AIDS Strategy, passed health care reform, and proposed budget increases for ADAP and HIV prevention,” Schmid said. “While he could always do more, we feel the criticism is misplaced and instead the focus should be on some members of the Congress, many of whom want to repeal health reform and cut funding to AIDS programs.”
Chris Collins, vice president and director of public policy for the Foundation for AIDS Research, or amfAR, said Obama has “greatly advanced” the domestic response to HIV.
“His national strategy, the Affordable Care Act — these are game changers in the domestic epidemic, so we should be proud of what the president has done on domestic AIDS,” Collins said.
Collins added he wants “to see increases” in PEPFAR funding, but said Obama has made historic commitments to the Global Fund to Fight AIDS, Tuberculosis, and Malaria and “new and more substantial commitments in terms of scaling up services.”
Asked by the Washington Blade during the news conference if Obama deserves credit for increasing funds for the Ryan White Care Program, Myers said Obama deserves some praise, but more is needed.
“The problem is, again, even with that, the ADAP waiting list – and ADAP is a part of the Ryan White Program — it’s chronic, it’s ongoing. … So, again, increases that have occurred, credit is where credit is due, but the point is, it is not enough,” Myers said.
Michael Weinstein, president of the AIDS Healthcare Foundation, who joined the conference via telephone, dismissed Obama’s increase in funds for the Ryan White Care Program on the basis that a minority percentage of people with HIV/AIDS are in regular care under the program.
“We are sending out a really mixed message when we have more waiting lists for these drug programs and we’re telling people that they should be tested,” Weinstein said. “I mean, why would they want to get tested when they don’t know if they can have access to treatment? But the bottom line is that to have only 41 percent of people in routine care and having more than 600,000 people who either don’t know that they’re positive or are not in routine care is not a success.”
Weinstein added his organization has tried “without a lot of success” to enlist help from the administration in bringing down the cost of medications, saying the federal government could offer more support “in negotiations with the drug companies to make these drugs more accessible.”
Blade photo editor Michael Key contributed to this report.
CORRECTION: An initial version of this article misquoted the AIDS Institute’s Carl Schmid as saying the AIDS Healthcare Foundation’s criticisms of Obama were “misguided.” The word he used was “misplaced.” The Blade regrets the error.
Tennessee
Tenn. lawmakers pass transgender “watch list” bill
State Senate to consider measure on Wednesday
The Tennessee House of Representatives passed a bill last week to create a transgender “watch list” that also pushes detransition medical treatment. The state Senate will consider it on Wednesday.
House Bill 754/State Bill 676 has been deemed “ugly” by LGBTQ advocates and criticized by healthcare information litigators as a major privacy concern.
The bill would require “gender clinics accepting funds from this state to perform gender transition procedures to also perform detransition procedures; requires insurance entities providing coverage of gender transition procedures to also cover detransition procedures; requires certain gender clinics and insurance entities to report information regarding detransition procedures to the department of health.”
It would require that any gender-affirming care-providing clinics share the date, age, and sex of patients; any drugs prescribed (dosage, frequency, duration, and method administered); the state and county; the name, contact information, and medical specialty of the healthcare professional who prescribed the treatment; and any past medical history related to “neurological, behavioral, or mental health conditions.” It would also mandate additional information if surgical intervention is prescribed, including details on which healthcare professional made a referral and when.
HB 0754 would also require the state to produce a “comprehensive annual statistical report,” with all collected data shared with the heads of the legislature and the legislative librarian, and eventually published online for public access.
The bill also reframes detransitioning as a major focus of gender-affirming healthcare — despite studies showing that the number of trans people who detransition is statistically quite low, around 13 percent, and is often the result of external pressures (such as discrimination or family) rather than an issue with their gender identity.
This legislation stands in sharp contrast to federal protections restricting what healthcare information can be shared. In 1996, Congress passed the Health Insurance Portability and Accountability Act, or HIPAA, requiring protections for all “individually identifiable health information,” including medical records, conversations, billing information, and other patient data.
Margaret Riley, professor of law, public health sciences, and public policy at the University of Virginia, has written about similar efforts at the federal level, noting the Trump-Vance administration’s push to subpoena multiple hospitals’ records of gender-affirming care for trans patients despite no claims — or proof — that a crime was committed.
It has “sown fear and concern, both among people whose information is sought and among the doctors and other providers who offer such care. Some health providers have reportedly decided to no longer provide gender-affirming care to minors as a result of the inquiries, even in states where that care is legal.” She wrote in an article on the Conversation, where she goes further, pointing out that the push, mostly from conservative members of the government, are pushing extracting this private information “while giving no inkling of any alleged crimes that may have been committed.”
State Rep. Jeremy Faison (R-Cosby), the bill’s sponsor, said in a press conference two weeks ago that he has met dozens of individuals who sought to transition genders and ultimately detransitioned. In committee, an individual testified in support of the bill, claiming that while insurance paid for gender-affirming care, detransition care was not covered.
“I believe that we as a society are going to look back on this time that really burst out in 2014 and think, ‘Dear God, What were we thinking? This was as dumb as frontal lobotomies,’” Faison said of gender-affirming care. “I think we’re going to look back on society one day and think that.”
Jennifer Levi, GLAD Law’s senior director of Transgender and Queer Rights, shared with PBS last year that legislation like this changes the entire concept of HIPAA rights for trans Americans in ways that are invasive and unnecessary.
“It turns doctor-patient confidentiality into government surveillance,” Levi said, later emphasizing this will cause fewer people to seek out the care that they need. “It’s chilling.”
The Washington Blade reached out to the American Civil Liberties Union of Tennessee, which shared this statement from Executive Director Miriam Nemeth:
“HB 754/SB 676 continues the ugly legacy of Tennessee legislators’ attacks on the lives of transgender Tennesseans. Most Tennesseans, regardless of political views, oppose government databases tracking medical decisions made between patients and their doctors. The same should be true here. The state does not threaten to end the livelihood of doctors and fine them $150,000 for safeguarding the sensitive information of people with diabetes, depression, cancer, or other conditions. Trans people and intersex people deserve the same safety, privacy, and equal treatment under the law as everyone else.”
National
Glisten’s 30th annual Day of Silence to take place April 10
Campaign began as student-led protests against anti-LGBTQ bullying, discrimination
Glisten’s 30th annual Day of Silence will take place on April 10.
The annual Day of Silence began as a student-led protest in response to bullying and discrimination that LGBTQ students face. It is now a national campaign for the LGBTQ community and their allies to come together for LGBTQ youth.
It takes place annually and has multiple ways for supporters to get involved in the movement.
Glisten, originally GLSEN, champions LGBTQ issues in schools, grades K-12. Glisten’s mission is to create more inclusive and accepting environments for LGBTQ students through curriculum, supportive measures, education campaigns, and engagement, such as the Day of Silence.
There are three main ways for the community to get involved in the Day of Silence.
Glisten has a Day of Silence frame, a series of pictures used as profile photos across social media that feature individuals holding signs. The signs allow for personalization, by providing a space to put the individual’s name, followed by filling in the prompt “ … and I am ENDING the silence by…”
Participants are encouraged to post the photo on social media and use it as a profile picture. The templates can be found on Google Drive through this link.
Using #DayOfSilence and #NSCS, as well as tagging Glisten’s official Page @glistencommunity, is another way to participate in the Day of Silence.
Glisten also encourages participants to tag creators, friends, family and use a call to action in their caption, to call attention to the facts and stories behind the Day of Silence.
“Today’s administration in the U.S. wants us to stay silent, submit to their biased and hurtful conformity, and stop fighting for our right to be authentically ourselves,” said Glisten CEO Melanie Willingham-Jaggers. “We urge supporters to use their social platforms and check in with local chapters to be boots on the ground to help LGBTQ+ students feel seen, heard, supported, and less alone. By participating in the ‘Day of Silence,’ you are showing solidarity with young people as they navigate identity, safety, and belonging. Our voices matter.”
South Carolina
Man faces first S.C. ‘hate intimidation’ charge
Timothy Truett allegedly shot at gay club in Myrtle Beach on April 1
A South Carolina man remains in custody on a more than $300,000 bond after he allegedly opened fire at a Myrtle Beach nightclub on April 1, according to WMBF.
Reports say 37-year-old Timothy James Truett Jr., of Clover, S.C., was detained by the Myrtle Beach Police Department after the April 1 incident outside Pulse Ultra Club. He was later arrested and charged with possession of a weapon during a violent crime, discharging a firearm into a dwelling, discharging a firearm within city limits, malicious injury to real property valued over $5,000, and assault or intimidation due to political opinions or the exercise of civil rights.
At 10:57 a.m. on April 1, officers responded to a call about a possible shooting at Pulse Ultra Club, located in the 2700 block of South Kings Highway.
In an affidavit released later, the club’s owner, Ken Phillips, said he was doing paperwork that morning when he heard “five or six” gunshots. He went outside and found a window and the windshield of his SUV shattered by bullets. An SUV with blue plastic covering one window was left at the scene.
Police later reviewed footage that showed a silver vehicle stopping in the middle of the road. The video appeared to capture muzzle flashes coming from the passenger-side window.
According to the affidavit, an officer later pulled over a vehicle driven by Truett and found spent shell casings in the back seat, along with a gun.
Documents do not detail why Truett was ultimately charged under the state law covering assault or intimidation tied to political opinions or the exercise of civil rights.
As of April 1, records show Truett is being held in Horry County on a combined bond of more than $312,000.
WMBF spoke with Phillips after the incident and asked whether there was any prior conflict that might have led to the shooting.
“I don’t know if it’s personal, I don’t know if it’s related to being gay, I don’t know if it’s related to the bar issues,” Phillips told WMBF. “Anybody with a mindset of pulling out a weapon in broad daylight is not right.”
“My primary concern has and always will be the safety of my community and my customers,” he added. “It’s given me great concern … as to how far people will go.”
WMBF also spoke with Adam Hayes, vice chair of Myrtle Beach’s Human Rights Coalition, who was involved in pushing for the ordinance. He said that while the incident itself is troubling, it shows the policy is being put to use.
The ordinance is intended to deter “crimes that are motivated by bias or hate towards any person or persons, in whole or in part, because of the actual or perceived” identity, in the absence of a statewide hate crime law.
“It’s nice to see that something we put into policy is not just a piece of paper, that it’s actually being used,” said Hayes.
He said the shooting underscores the need for a statewide hate crime law in South Carolina and added that the incident has left the local LGBTQ community shaken.
South Carolina and Wyoming are the only two states in the U.S. without a comprehensive statewide hate crime law.
Truett remains in jail as of publication.
