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Obama signs bill for HIV organ donation

Lifting of ban opens organ donor pool by 500 to 600 people annually

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Citizens Metal, Barack Obama, gay news, Washington Blade
Citizens Metal, Barack Obama, gay news, Washington Blade

President Obama signed into law a bill on Thursday allowing people with HIV to donate organs (Washington Blade file photo by Michael Key).

President Obama signed into law on Thursday afternoon a bill approved by Congress with significant bipartisan support that lifts the ban on the donation of organs from HIV-positive people to others with HIV.

In a statement, Obama said he signed the legislation, called the HIV Organ Policy Equity Act, or HOPE Act, to provide the opportunity for people with HIV to receive organ donations.

“The potential for successful organ transplants between people living with HIV has become more of a possibility,” Obama said. “The HOPE Act lifts the research ban, and, in time, it could lead to live-saving organ donations for people living with HIV while ensuring the safety of the organ transplant process and strengthening the national supply of organs for all who need them.”

First enacted in 1988 during the peak of AIDS crisis, the ban on the donation of organs from HIV-positive donors and related research was passed by Congress as part of the Organ Transplant Amendments Act.

Efforts to repeal the ban picked up steam now that HIV-positive people are living longer lives thanks to advances in antiretroviral therapy. Despite their new longevity, these patients are now more likely to face chronic conditions such as liver and kidney failure, for which organ transplants are the standard form of care.

Kyle Murphy, a spokesperson for the National Minority AIDS Council, said the bill signing demonstrates  Obama is committed to “evidence-based solutions” to confronting HIV/AIDS.

“The outdated ban on HIV-positive organ donation left countless infected, but otherwise healthy organs unused while condemning thousands of people living with HIV to languish on transplant wait lists,” Murphy said. “Reforming this policy not only gives hope HIV-positive individuals in need of a new organ, it will also free up uninfected organs for HIV-negative patients.”

The U.S. House passed the HOPE Act by voice vote on Nov. 12. Although versions of the legislation were introduced in both chambers of Congress, the House approved the Senate-passed version, which the Senate approved in June by unanimous consent.

In the Senate, the bill was introduced by Sens. Barbara Boxer (D-Calif.) along with Tammy Baldwin (D-Wis.), Tom Coburn (R-Okla.) and Rand Paul (R-Ky.) as original co-sponsors. In the House, Reps. Lois Capps (D-Calif.) was lead sponsor and Andy Harris (R-Md.) was an original co-sponsor.

Capps said in a statement the legislation was crafted after years of work and passed in collaboration with the HIV and medical communities after achieving building a bipartisan, bicameral consensus.

“This proves that even in a divided Congress, we can come together to pass common sense bills with bipartisan efforts that will help save lives, improve health outcomes, and save taxpayer dollars,” Capps said.

Harris, a physician, said in a statement the legislation “gives new hope” to people with HIV awaiting organ transplants.

“As a physician who has performed anesthesia during organ transplants, I have seen firsthand the life-saving joy that receiving an organ can bring to patients and their families,” Harris said. “I appreciate the bipartisan support this common sense change to an outdated law has received.”

Under the HOPE Act, the Department of Health & Human Services and the Organ Procurement Transplant Network, or OPTN, will be directed to create standards for research on HIV-positive organ transplantation. The law permits the secretary to permit positive-to-positive transplantation if the results of research are determined to warrant such a change. The secretary would be required to direct OPTN to create standards to ensure that the organ transplant doesn’t impact the safety of the transplantation network.

An estimated 100,000 patients are on the active waiting list for organ transplants in the United States and about 50,000 people are added to the list each year. According to a study in the American Journal of Transplantation, allowing organ transplants from HIV-positive donors to HIV-positive recipients could increase the organ donation pool by 500 to 600 donors each year.

Obama concluded in his statement that lifting the ban on HIV organ donation is line with his previous efforts to confront the HIV/AIDS epidemic.

“Improving care for people living with HIV is critical to fighting the epidemic, and it’s a key goal of my National HIV/AIDS Strategy,” Obama said. “The HOPE Act marks an important step in the right direction, and I thank Congress for their action.”

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Cuba

Trans parent charged with kidnapping, allegedly fled to Cuba with child

Cuban authorities helped locate Rose Inessa-Ethington

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A transgender Pride flag flies over Mi Cayito, a beach east of Havana. Cuban authorities helped locate a transgender woman who U.S. authorities fled to the island with her 10-year-old child who she allegedly kidnapped. (Washington Blade photo by Michael K. Lavers)

Federal authorities have charged a transgender woman with kidnapping after she allegedly fled to Cuba with her 10-year-old child.

An affidavit that Federal Bureau of Investigation Special Agent Jennifer Waterfield filed in U.S. District Court for the District of Utah on April 16 notes the child is a “biological male who identifies as a female” and “splits time living with divorced parents who share custody” in Cache County, Utah.

Waterfield notes the child on March 28 “was supposed to be traveling by car to” Calgary, Alberta, “for a planned camping trip with his transgender mother, Rose Inessa-Ethington, Rose’s partner, Blue Inessa-Ethington, and Blue’s 3-year-old child.”

The affidavit notes the group instead flew from Vancouver, British Columbia, to Mexico City on March 29. Waterfield writes the Inessa-Ethingtons and the two children then flew from Mérida, Mexico, to Havana on April 1.

The 10-year-old child called her biological mother on March 28 after they arrived in Canada. The custody agreement, according to the affidavit, required Rose Inessa-Ethington to return the child to her former spouse on April 3.

“Interviews of MV [Minor Victim] 1’s family members provided significant concerns for MV 1’s well-being, as MV 1 was born a male, however, identifies as a female child, which is largely believed to be due to manipulation by Rose Inessa-Ethington,” reads the affidavit. “Concerns exist that MV 1 was transported to Cuba for gender reassignment surgery prior to puberty.”

The affidavit indicates authorities found a note in the Inessa-Ethingtons’ home with “instruction from a mental health therapist located in Washington, D.C., including instruction to send the therapist the $10,000.00 and instructions on gender-affirming medical care for children.”

The affidavit does not identify the specific “mental health therapist” in D.C.

A Utah judge on April 13 ordered Rose Inessa-Ethington to “immediately” return the child to her former spouse. The former spouse also received sole custody.

“Your affiant believes that due to the extensive planning and preparation exhibited by both Rose Inessa-Ethington and Blue Inessa-Ethington to isolate MV 1 and take MV 1 to Havana, Cuba, without notifying or requesting permission from MV 1’s mother indicates they are likely not planning to return to the United States,” wrote Waterfield.

The affidavit notes Cuban authorities found the Inessa-Ethingtons and the child.

A press release the U.S. Attorney’s Office for the District of Utah issued notes the Inessa-Ethingtons “were deported from Cuba” on Monday “with the assistance of the FBI.”

The couple has been charged with International Parental Kidnapping. The Inessa-Ethingtons were arraigned in Richmond, Va., on Monday. The press release notes a federal court in Salt Lake City will soon handle the case.

The New York Times reported the child is now back with their biological mother.

“We are grateful to law enforcement for working swiftly to return the child to the biological mother,” said First Assistant U.S. Attorney Melissa Holyoak of the District of Utah in the press release.

The case is unfolding against the backdrop of increased tensions between Washington and Havana after U.S. forces on Jan. 3 seized now former Venezuelan President Nicolás Maduro and his wife, Cilia Flores.

President Donald Trump shortly after he took office in January 2025 issued an executive order that directed the federal government to only recognize two genders: male and female. A second White House directive banned federally-funded gender-affirming care for anyone under 19.

The U.S. Supreme Court last year in the Skrmetti decision upheld a Tennessee law that bans gender-affirming care for minors.

Cuba’s national health care system has offered free sex-reassignment surgeries since 2008.

Activists who are critical of Mariela Castro, the daughter of former President Raúl Castro who spearheads LGBTQ issues as director of Cuba’s National Center for Sexual Education, have previously told the Washington Blade that access to these procedures is limited. The Blade on Wednesday asked a contact in Havana to clarify whether Cuban law currently allows minors to undergo sex-reassignment surgery.

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Rehoboth Beach

Rehoboth Summer Kickoff Party set for May 15 with Ashley Biden

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Former first lady Jill Biden and daughter, Ashley Biden attend the White House Pride celebration on June 26, 2024. (Blade photo by Michael Key)

The Washington Blade’s 19th annual Summer Kickoff Party is scheduled for Friday, May 15 in Rehoboth Beach, Del.

Ashley Biden, daughter of President Joe Biden, has joined the list of speakers, the Blade announced. She will accept an award on behalf of her brother Beau Biden for his LGBTQ advocacy work as Delaware attorney general. (Her appearance was rescheduled from last year.)

The event, to be held this year at Diego’s (37298 Rehoboth Ave. Ext.) from 5-7 p.m., is a fundraiser for the Blade Foundation’s Steve Elkins Memorial Fellowship in Journalism, which funds a summer position reporting on LGBTQ news in Delaware. This year’s recipient will be introduced at the event.

The event will also feature remarks from state Rep. Claire Snyder-Hall. New CAMP Rehoboth Executive Director Dr. Robin Brennan and Blade editor Kevin Naff will also speak. The event is generously sponsored by Realtor Justin Noble, The Avenue Inn & Spa, and Diego’s.

A suggested donation of $25 is partially tax deductible and includes a drink ticket and light appetizers. Tickets are available in advance at bladefoundation.org/rehoboth or at the door. 

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District of Columbia

Curve magazine honors Washington Blade publisher

Lynne Brown named to 2026 Power List

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Blade Publisher Lynne Brown is being honored by Curve magazine.

Washington Blade Publisher Lynne Brown has been named to the 2026 Curve Power List celebrating LGBTQ+ women and nonbinary individuals in North America who are blazing trails in their chosen fields.

“From sports and entertainment icons to corporate leaders and lawmakers, these individuals are breaking barriers, challenging norms, and shaping the future,” Curve Foundation/Curve magazine said in announcing this year’s list, which includes ABC newscaster Robin Roberts, comedian/actress Hannah Einbinder, and singer/actress Renee Rapp, among others.

Brown has worked for the Washington Blade for nearly 40 years. She was named publisher in 2007 before becoming a co-owner in 2010. 

“I am honored to be recognized by Curve magazine during Lesbian Visibility Week,” Brown said. “Receiving this Curve honor is twofold. I was an early subscriber to Curve. I enjoy the product and know its history. Its journalism, layout and humorous features have inspired me.   

“As an owner/publisher, receiving recognition from a similar source acknowledges my work and efforts, with a sincerity I truly appreciate. Franco Stevens, the publisher of Curve, is a business person of duration, experience, and purpose. The fact that they are in the media business, and honoring me and my publication makes it a tiny bit sweeter.” 

Nominations for the Curve Power List come from the community: peers, mentors, fans, and employers. 

Curve explained the significance of the list in its announcement: “An annual, publicly nominated list of impactful LGBTQ+ women and nonbinary changemakers is crucial in current times to counter discrimination, legislative rollbacks, hostility, and the invisibility of queer women within mainstream and marginal spaces and endeavors. Such a list also fosters encouragement and solidarity, and elevates voices and achievements—from high-profile roles to under appreciated areas of life.”

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